Niemann Pick Type C Disease is an autosomal recessive disorder which affects the lipid metabolism and cases harmful amounts of lipids to accumulate in the spleen, liver, lungs, bone marrow and brain. Type C disease of the Niemann Pick is one of the rarest diseases (an estimation of 1 in 150,000 people of incidence) and affected kids are able to survive into adulthood or may die in childhood, before the disease over-takes their body thus resulting in death. The Niemann Pick Type C disease has a 100% fatality rate for those who have been tested positive with Type C Niemann Pick disease. There are foundations helping the fight this deadly disease like the National Niemann-Pick disease Foundation and Hadley Hope in the fight, support and promoting researches.
Hadley Hope is a family of five with three kids, two of which are diagnosed with the life-killing Niemann Pick Type C Disease. The Hadley kids consist of a 10 year old, 7 year old and 5 year old. The youngest one is not a carrier or has the disease; however, sadly, the two oldest children have been tested to be positive. The Hadley family created Hadley Hope from the inspiration their own kids have shown while living and battling everyday against Niemann pick Type C disease. Hadley Hope is also a non-profit organization, bringing together families with children suffering from Niemann Pick all over the world. Hadley Hope also helps raise funds to support the research for a cure and treatments with various donations and fund-raisers.
Today AccessoryGeeks.com has joined the fight against the Niemann Pick Type C disease with Hadley Hope.
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